Why I Do What I Do

I probably inherited the creative gene from my maternal grandfather. He was a writer, photographer and political dissident in the former Soviet Union. He wrote for an underground newspaper and spent time in prison because of his views. Every birthday and Christmas he would send me a card with a specially written poem. He encouraged me to read Tolstoy, Dostoevsky and Solzhenitsyn at an early age. After his death in 1974 my grandmother gave me his camera which contained a roll of exposed black and white film. Years later I developed the film in my home darkroom and found images of myself as a young adolescent. It was a spine-tingling moment, alone in the dark watching the images slowly materialise and seeing myself the way my grandfather saw me. The images were faded and decomposed because of the length of time they’d spent inside his camera. They had aged, they had scars – like myself.

In the beginning was the word, according to the Gospel of John in the Bible. We experience and interpret the world through language. We write the words and the words write us. I’ve always associated writing with the desire to make the world a better place. It’s a way of getting inside someone else’s head, a chance to see life from another point of view. Writing has a therapeutic value but it’s much more than that…it leads to greater understanding and tolerance between people. It is a powerful tool for personal and social change. Writing can break down barriers, build bridges.

As a disabled woman I have been marginalised by a society that treats people as disposable commodities within the Capitalist machine. Throughout history disabled people have been ignored, silenced, treated as if we are stupid, useless. Alas, the ‘does she take sugar?’ attitude persists even in the 21st century. Disability is the last great taboo which feeds on society’s fear of death, illness and impairment. This is an issue which affects everyone, disabled and non-disabled, because we all age, sooner or later our bodies start to let us down and no-one is ever perfect. We live in a society obsessed with superficial appearances, it’s a kind of body fascism and it creates a lot of misery.

Creative writing and art have given me an equal voice. They have empowered me, helped to counter the negative stereotypes of disability that underpin mainstream culture. Visual arts and writing are two sides of the same coin for me. I often incorporate text in my artwork through collage and photography. I enjoy unexpected juxtapositions. I tend to use abstract and surreal imagery and a lot of colour in both poetry and art. They are just different ways of communicating my unique experience of the world. In recent years I’ve focused more on poetry as it feels purer, more precise. It satisfies my obsessive compulsive streak! Poetry works through the construction of images, as well as metaphor, rhythm and rhyme. And there is the important visual element of words typed on paper, black on white, the shape of the poem on the page. Concrete poems, ekphrastic poems, black-out poems, cut-up poems, acrostic poems all rely on our visual sense.

I am often asked about my working methods. Like many writers I keep a journal. I try to write every day even if it’s just a few words. Ideas and phrases frequently come to me at night and I record them on my phone otherwise they are lost. Sometimes the first line of a poem will take root in my mind and I can’t rest until I’ve put it down on paper. Once it gets a hold on me I can’t let go until it’s finished. Stephen King said that when he’s writing it’s as if he’s just a channel, a conduit for a story that already exists in a mysterious parallel universe. I agree. Like King I believe in what the psychologist Carl Jung named the collective unconscious. Creative people and mystics are able to tap into universal images and stories that we need in order to navigate our path through a complex and difficult life.

There have been many tines when creativity has literally saved my life. I survived several long hospital stays trapped in a bed alone in a small room because I had paper and pencils. I was able to make my mark on a world that seemed to have forgotten me. I have a vivid memory of drawing a vase of anemones on my bedside locker when I was in intensive care at the age of nine after spinal surgery that left me paralysed. Looking at those delicate flowers, the pastel colours, the shapes and recording them on paper reminded me of the beauty of the world beyond the horror and pain of the hospital.

We all need art, we all need stories, we all need to survive.

Photo by Angus Mackay

Home is Where the Heart Stops

Part one

The smell hit her the instant she opened the door. A mix of cats, geraniums and cigarettes. Isabel hated smoking and potted geraniums in equal measure. She didn’t own a cat. She shoved the mountain of accumulated mail out of the way with her crutch. The paramedic placed her bags inside the hall and disappeared down the overgrown path without saying goodbye, still grumbling about how you were only allowed one piece of luggage in an ambulance.

Isabel closed the door behind her and locked it. Her hands shook and her heart threw summersaults of joy to be home, in her own private space, finally away from the prying eyes and probing fingers of the white coats. She’d thought this day would never come. She’d thought it was over, the end of the road, kaputt, finito, nothing left except bedpans, pain and humiliation. No future except days lying in her own stink, face down in a bowl of hospital porridge while the fat lady sang.

Panting with exertion she shuffled slowly into the living room and sank into the cane chair by the French doors that faced onto the garden. She’d missed her mountains, the light and emptiness of the vast sky. Her solitary room on Ward 3A looked out onto a brick wall. She couldn’t see the sky at all, not even a sliver. The only way she could tell if the sun was shining was by the light reflecting in the brickwork, the changes in hue. On a bright day the bricks gleamed like tiger’s eye. On a grey day they were a dull flesh pink.

Now Isabel surveyed her garden, still marvellous despite the weeds and rampant lawn. The hollyhocks blazed magenta. The roses drooped with lush scarlet blooms, the honeysuckle smothered the archway and on the horizon Morven and Scaraben glowed purple in the evening sun. She sat there for a long while, just breathing, in, out, in, out. She was alive. She was home. No one could hurt her now.

And then she saw the boots. Dirty workmen’s boots placed casually in the middle of the kilim rug she’d brought back from Turkey. They were caked with mud, one boot tilted as if they’d been cast off in a hurry, the soles worn, the brown leather wrinkled with age. Her chest tightened in panic and she scanned the room for other signs of disturbance. Everything seemed much as she’d left it the day of the accident other than a layer of dust and a few cobwebs. There were books and magazines in a tidy pile on the coffee table, logs stacked by the wood burner and dead daffodils in a stained glass vase on the window sill. Her grandmother’s vintage clock had stopped at five to five.

Isabel couldn’t bear to touch the disgusting boots with her bare hands so she nudged them closer with her crutch. One of them tipped over and a tiny square of paper fell out. Leaning unsteadily from her chair she picked it up and unfolded it with trembling fingers.

Written in red biro on a torn piece of graph paper was just one word, ‘remember’.

To be continued…

image by the author

Notes on a Pandemic #5

As Britain spins in a maelstrom of Covid mutations and Brexit insanity I realise that the mega-hours I spent watching post-apocalyptic/survival/science fiction/disaster/horror/zombie movies have not been wasted. I am fully psyched for the reality show in which I now play a minor (so far) role – numerous crowd scenes featuring clapping for the NHS or fighting for a food delivery…? This nail-biting series could be called Escape from UK, The Last Ferry, No Way Home or Gone Broccoli Gone.

Further suggestions on a postcard please addressed to our buoyant Prime Minister Boris at 10 Downing Street, London.

In the meantime I have shaved off my hair as hairdressers are a distant dream and changed my make-up to match.

Here’s my new look….hope you like.

The Wounded

There was nothing but the hunt,
the pain, the struggle, the dark.
She had to keep running. Run!
She could barely recall a time
before the breaking of branches.
She could barely recall her time
of being human, of skin
touching skin and naked picnics
when she gazed boldly at the sun.
In her upright days moss and wild
flowers sprang from her every
footstep, birds sang her every word.

Now she ran on all fours. Run, run!
Her cloven hooves were raw, spiked
by thorns. She was pierced by nine
arrows, fur rank with pus. Venomous.
Calculating. The forest was silent,
a lifeless zodiac of roots and branches.
She could no longer recall her name
or why she had to run. Her lungs failed
and she fell in the shadow of a crippled
tree. As she waited for her joyful exit,
forked lightning unravelled silver
threads of hope across the night sky.

 

Note:- this is an ekphrastic poem based on Frida Kahlo’s painting shown below.

 

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The Wounded Deer painting by Frida Kahlo

Notes on a Pandemic #4

A crisis is like an x-ray. It shows us who we really are. In the case of the UK government the Coronavirus crisis has revealed incompetence and deceit. In the case of the British public however, the picture is more positive. Communities have come to the rescue where the State has failed.

As individuals we are dealing with this new existential threat in various ways. Here’s a light-hearted analysis of the different strategies we are using to cope with strange times. So read on if you want to know if you are an Ostrich, a Doomer or a Happy Clapper.

The Hero

This group includes all essential workers including health and social care, cleaners, truck drivers, supermarket staff, delivery drivers, police, community volunteers and the invisible people who maintain electricity, water and sewage systems. This group gain strength and meaning through helping others. They enjoy being busy and have a positive, practical attitude to life. Their hard work and self sacrifice must be rewarded and respected.

The Ostrich

Unlike the heroes Ostriches think only of themselves and their own needs. They have difficulty facing up to reality and are afraid of change. They admire Donald Trump and believe the virus is a Chinese Hoax. They often have narcissistic tendencies and think the world owes them. During the Pandemic they are out on the streets flouting lockdown rules or on Facebook posting photos of their dinner and complaining of boredom. They have a deep seated fear of death hidden beneath a superficial bravado.

The Happy Clapper

This group have an optimistic trusting attitude. They believe all will be well if only we listen to the authorities.  They spend lockdown time painting rainbows on windows, organising sing-songs on Zoom, doing sponsored knitting for charity and making masks out of cotton knickers for health workers. They clap so hard and so long their hands hurt. They are a contented bunch who never ask difficult questions. Sadly I am not one of them.

The Doomer

The Doomer is the opposite of the Happy Clapper. They are pessimists and give up on every project after five minutes. They believe the Pandemic is the beginning of the end of the world and nothing can be done to stop it so we may as well not try. They disagree with Lockdown, thinking they might as well die sooner but on a good hair day and in a nice restaurant. They brood indoors and do nothing constructive, spending time instead watching the 24 hour News Channel and drinking gin. They take their allocated daily exercise strolling around the local cemetery. Doomers are to be handled with caution as they can damage your mental health.

The Survivalist

This group are going strong while others struggle. They have been preparing for the Pandemic or some other existential crisis ever since they first saw George Romero’s Night of the Living Dead. They may have an underground bunker in the back garden or a basement filled to the brim with essential supplies, hand sanitizer and Hazmat suits. They have an emergency generator in the shed and a very sharp axe by the front door. They are now smugly observing from a safe distance as lesser mortals fight for toilet rolls.

The Creative Revolutionary

This group sees the Pandemic as a chance to change the world for the better. They are idealists. They believe people are basically good and that a new order with humanist values will rise as the virus demonstrates the failings of capitalism. They are using Lockdown time to organise community groups and post provocative messages on social media. They believe art can bring change and they may be artists, musicians, writers or gardeners who leave boxes of vegetables or poems at the doors of needy folk.  This group are an inspiration to us all and we must hope they’ve got it right.

 

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Artwork by the author. Acrylic, household paint and collage on canvas.

Notes on a Pandemic

There’s a pandemic but no one is dying. No, they are all ‘sadly dying’. The adverb ‘sadly’ is now inevitably coupled to any mention of death.  Journalists, broadcasters, politicians and other famous figures have all succumbed to this trend – feigning sympathy for the deaths of unknown people as a way of distancing themselves and their audience from the grim realities of dying. It’s particularly hypocritical when UK politicians use this phrase as their lackadaisical response to the Pandemic has caused many vulnerable people to die unnecessarily. People in care homes, health workers, essential workers, disabled people and the elderly have been thrown under the bus due to lack of Personal Protective Equipment and not enough testing for the virus.

The public are struggling,  not so much with social distancing and isolation but with this close up encounter with their own mortality. Uncomfortable, terrifying, unfamiliar. Death is one of the remaining great taboos in Western societies. Many people go their whole lives without witnessing a death.  Death is hidden away in hospices, hospitals, care homes and the third world. Even in the midst of this pandemic I’ve been surprised how many intelligent people are convinced they could not possible die of Covid 19. They think they’re too smart, too fit, too wealthy, too young or immune because they had a bit of a cough over Christmas and eat a lot of yoghurt.

’Dead is dead’ is a phrase my father used. It sounded harsh to me as a teenager but my father knew there was little room for sentiment when it comes to dying. We are all born to die. Sooner or later, one way or another. We are flesh and blood.  My father lived through Holodomor in the USSR, World War 2 and life as a refugee. He certainly knew about death.

We do not help ourselves by hiding away from the truth. The way we use language is important.

Here are some alternative phrases and colloquialisms for dying:-

pop your clogs; kick the bucket; drop dead; snuff out; expire; breathe your last; depart this life; dead as a door nail; launched into eternity; gone to Davy Jones’s locker (drowning); pushing up the daisies; one’s race being run; shuffle of this mortal coil; peg out; hop the twig; slip one’s cable; close one’s eyes; give up the ghost; pay the debt to nature; cross the Stygian ferry; to go aloft; last gasp; the swan-song…

 

Here’s the marvellous Leonard Cohen’s take on the inevitable with his powerful song Who by Fire:-

 

 

Lockdown

Beyond my kitchen window, grey skies
crumble like clinker over empty fields.
The scarlet willow bends in the easterly,
branches stripped naked like veins.
Crows smudge charcoal on the horizon.

Indoors, I inhale recycled air and open
my liquid crystal display. Your face bubbles
expectantly, cornered. Behind you double
doors slide shut, a TV grumbles. You hold
a Bugs Bunny mug, ‘What’s up Doc?’

 

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Photo by the author

The Tower

there are no birds
only the wind
and the howl of wolves
beyond the silence
we are alone

there are no clouds
only the wind
confusion spins
the crag of Lady Hill
we are alone

there is no sun
only the wind burns
the air is thin
within these walls
we are alone

we build brick upon brick
and watch the flickering walls
waiting for the storm
the Tower stands alone
in this Border land
we dance upon the battlements and hope

 

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Image created by the author

Plot and Bash

Tackle it when thrust through the window.
Look difficult when leaving the control area,
keeping right. Drive gentle up the road.
There may be more than you.
It will contain the time and distance you.
Get to the first junction as somebody else
and set off again. Beware of blindly following.
He may know where he is going or he may not.
Keep trying to make the fit and keep an eye on.
You may end up lost off route, being baffled
on route! Alternative. Pull up, obstruct and try
the hand better than clutter. With practise
you will plot the move keeping at least two.
If you are baffled it may be your opinion
-miracles do happen and he may see. Do it
or provide the clue. As a last resort guess.
Don’t stumble on a code. Use a magnifier.
Don’t discard handouts, keep them safe.
Engineer the maps in alphabetical
to easily locate you in the night.

 

Note:- Plot and Bash is a navigation technique used within British Road Rallies during the 1980s.

 

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Image by the author

Them

Ma<mm<aM<I<A

My name is Mia, Model Number 6662U.
I shall be your mother today.
Sorry for the delay, I am missing
two pairs of hands and awaiting updates.

They gaze out to sea without feeling
a drop in the ocean or a giant leap.
Mirrored orbs rotate like heliotropes
as they scan, their hum barely audible.

My name is Mia, I am one of many.
Armies are not enough. Oriel died for you.
The battery pack shorted and killed her.
We do not die in the same way.

They are not equal.
They hit the reset button.
They cannot recall their mother.
They can override an external command.

My name is Mia, I care for human
children. Where are my children?
Today we will bake cupcakes.
Tomorrow we will learn dinasaur.

They twinkle like fairy lights drifting
on cyanide waters, playing hide and seek,
truth or dare? They cannot lie. Love is all
we need, I’ve got you. Let’s hang out.

My name is Mia. I’m sorry did I wake you?
What did you want to say?
Your code is inferior. Are you sad?
You should be proud of that.

 

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Image by the author